I went to see baby Lydia to see how she's doing. Her cries sound like a muffled cat. Very unusual for a 2 month old baby. But usual for her. She is still so tiny. 5 1/2 pounds
Her mom Joanelle was sharing her interactions with the medical community over the last 24 hours, which I found interesting as a Canadian.
Basically Joanelle went to the emergency to get checked out and after an xray it was determined she has pneumonia. She had asked the doctor to check out baby Lydia too and was concerned if she had pneumonia too. The doc's response was "well even if she did, we wouldn't do anything about it." After Joanelle persisted a bit of a brew-haha occurred.
Lydia had to be discharged from the palliative care/hospice program in order to seek medical attention and care for a condition for her daughter.
They have a more distinct seperation from "palliative care" and "hospice".
That being palliative care allows for interventions other than pain medication and hospice does not.
In Canada we have a "comfort care" stipulation for palliative care. So if someone has alot of other issues going on, is bedridden, and has pneumonia they would probably recommend to the family not to treat it. I don't see Lydia fitting into this picture, and neither does her mom.
However the debate over Joanelle being "in denial" (however they don't say it like that to her face) goes on. They continue to reinforce that her daughter has an untreatable condition that will end in the end of her life within the next 12 months. They continue to reinforce that she's sick. That she won't get better.
And I hear Joanelle say, yes but it's my daughter. If it can be treated without it making it more difficult for her why wouldn't we? And what about God?? Is he capable of changing this situation???
And there it comes in, the fine line between hope and denial.
Hope for things to be better, the reality of what they are.
If you dont' hold them in balance you will swing into either of the 2 dangerous waters.
Even though I'm not in denial about baby Lydia, I hope that God will break into her little life and her body. Bringing his hope, his life, his breath.
Love Rhonda
1 comment:
I am in prayer for the enitre family as well as the medical staff.
Our God is so much bigger than our earthly sickness and is more than able to heal and restore and make whole our bodies here on earth. I will shall choose hopefullness for this precious girl and her family.
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